25 things only a mother of a child who is visually impaired would know

DSC_0187Becoming a parent to any child is magical in its own right, but below is a list of observations about things only a mother of a child who is visually impaired would know. Myself and a group of other super-mums have helped to create this list!  How many of them resonate with you?

  1. We all as parents know the fear of keeping eyes on our children constantly to make sure they are safe, more so if your child has a visual impairment, the stress of completing this task increases ten fold! Oh why isn’t it humane to put a lead on a child?
  2. Mess, mess and more mess! A simple meal time resembles an impromptu food fight.  School jumpers only last a day!
  3. How to smile sweetly at the question ‘are they sleeping?’.
  4. Support from friends and family means the world for any parent, but when another mum who has a child with a visual impairment says ‘yes I get that’ it makes it all seem a whole lot better.DSC_0374
  5. The dreaded licking and mouthing of random items and surfaces, takes children who have a visual impairment longer to grow out of this phase. I literally got to a point where I gave up ensuring everything was sterile for my own sanity.. lick away, just lick away.
  6. It is horrible to see any child get hurt, but when a child who has a visual impairment bumps their head, when it is your duty to guide them it makes you feel absolutely terrible, guilt, shame, world ending type feeling.
  7. Sleep… more so lack of it!  Up and down during the night well into the early years.  Sleep god damn you before you tip me over the edge!
  8. DSC_0064When they overcome something and achieve a goal, develop a skill, master an art which would be considered more difficult due to their sight impairment it is like winning the lottery.
  9. How your child gives you an incredible strength and fight within you that you never knew existed.
  10.  They open up a whole new world for tantalizing different senses, you begin to listen harder and touch with your eyes shut, the child’s blindness changes your vision.
  11. That your  baby teaches you more than you teach it.
  12. That you know how to spell and say Nystagmus.
  13. 20140512_142342Accepting the trust your child has in you to guide them safely.
  14. Learning to describe the world around you even when people stare.
  15. Staying positive when people say how sad blindness is.
  16. The joy of sharing an accessible book.
  17. As a mum of visually impaired child trust your heart and be forced into decisions by people around you, you know your child better than anybody else.
  18. The connection you can have with your child through sound and song.
  19. Understand the total uselessness of the words “Over here and over there. ” and are repeatedly annoyed with yourself for using them. Doh!
  20. Can audio descript on demand especially to anything shown on cbeebies.
  21. Can make any crap children’s book a tactile extravaganza by using random, material, sweet wrappers, old clothes and sandpaper.
  22. 12077010_10153750689799073_200683194_nCan now label all parts of the eye. Last achieved in Year 7 many many years ago.
  23. Seek out toys that beep, bong, speak, sing with flashing lights knobs bells and whistles whilst all other mum run the other way.
  24. That everyone feels sorry for you but knowing that the way society treats you and your kids is a far greater burden than not being able to see.
  25. They help you to ‘see’ what really matters in the world.

 

A big thank you to Jessica Portch, Karen Newell, Malak Allouch, Kristy Heywood, Rebecca Atkinson and Trudie Graham for the inspirational input!

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