Lachlan’s Story

I knew from 6 weeks of age that something wasn’t quite right with my son. The doctors thought I was being paranoid but a mother knows her child and I knew something was wrong. Everyone told me to stop worrying and that children all develop at different rates. Cut to age 4 months and we get the phone call, ‘Your son is blind, he has a rare condition called Lebers Congenital Amaurosis and unfortunately is at the severe end of the scale’. I felt like someone had just ripped my heart out, I was so scared for my baby boy … Read more