Our Complete Article Collection

Bonding with your blind baby: Little Amber

I do not think we’d be alone in remembering back to those first two years with Ronan and the challenges of trying to figure out what worked for our blind baby. It never seemed to be what was written the books for other babies. While we had lots of smiles, we also had lots of tears that left us wondering what to do as new parents. We gradually built our connection with Ronan through music. We sang and sang and sang some more. We played with music toys and wrote musical stories for him. Indeed, Ronan, now almost five, has … Read more

Get Cycling

We live in a city in which 50% of people commute to work by bicycle at least once a week. Indeed, we rely solely on bicycles to get around. In a city so full of bicycles, we see daily how many shapes, sizes, and configurations they can come in. Some imaginable and some way beyond imaginable. We’ve been thinking for some time about what should be Ronan’s first bicycle. Ronan can spend hours in our front garden climbing up onto the seats of our various bicycles to ring the bells. Our bicycle park is like another child’s jungle gym with … Read more

Real life Batman visited Bristol

A very exciting event happened this weekend;
World Access for the Blind President and Lead Perceptual Navigation Instructor Daniel Kish aka ‘Real Life Batman’ is on assignment in the UK and visited Bristol for two days, beginning Sunday, March 12 at 12 Noon.

 Families with blind or low-vision children were welcome to attend to meet and participate in a walk with Daniel to learn more about WAFTB’s FlashSonar™ Echolocation and pioneering full-length navigation cane techniques.

 Daniel Kish, a man who is completely blind and lost sight as a baby has become a pioneer in teaching blind or partially sighted children a new … Read more

MACS- the UK’s national charity for children born without eyes or with underdeveloped eyes.

MACS started life in 1993 as a small support group run by, and for, parents whose children were born with Anophthalmia, Microphthalmia and/ or Coloboma. These terms mean that the eye/s are missing, or are small and underdeveloped. Approximately 80 to 90 affected children are born in the UK every year and MACS – as the UK’s only charity supporting people with these specific conditions – has grown in response. Despite this, we’ve stayed true to our roots, continuing to place the needs of our community at the core of all that we do. Impact on sight can vary greatly. … Read more

British Wireless for the Blind Fund- Keeping blind people in touch with the world

Visually impaired children can benefit from audio equipment which has been specially adapted for easier use by those with sight loss. National charity British Wireless for the Blind Fund (BWBF) provides a range of radios on free loan to visually impaired people who meet its criteria. Recipients need to be over the age of eight, registered blind or partially sighted and in receipt of a means-tested benefit. The equipment is also available to purchase from the charity’s marketing arm BWBF Direct if the criteria is not met, and a VAT exemption applies for anyone who is registered blind or partially … Read more

The Amber Trust: Music for blind and partially sighted children

The Amber Trust is a charity set up to fund and support music for blind and partially sighted babies and children. Their tag line is that music is a life line, not a past time. They fund instruments and music lessons, as well as provide advice from engaging a blind baby with music to the complications of getting braille music arranged. Eighteen months ago I very tentatively sent an email to the Amber Trust lead, Professor Adam Ockelford. I asked him what should I do with my child who sang constantly, had taught himself to play piano, but was totally … Read more

Museo Tiflologico, Madrid (Typhological Museum or the “Touch and See Museum”)

Last week we visited a fantastic, small museum in Madrid, Spain. It is run by ONCE, the National Organisation of the Blind in Spain. My son is nine years old and was born blind, with light perception only. Despite our best efforts, calling ahead etc, museums are often rather demoralizing and frustrating places for him to visit. Consisting mostly of smooth glass panels behind which, people assure him, are lots of very interesting things, none of which he can experience. We usually find the best touching options in the museum shop. This museum is different. It is set up for … Read more

The Carers Trust Online Communities

Our team is responsible for the online communities run by Carers Trust, which support carers of all ages. We provide carers with the opportunity to access a wide variety of advice, information, social and peer support through our three online communities: www.babble.carers.org (for young carers under the age of 18), www.matter.carers.org (for young adult carers aged 16-25) and www.carers.org (for any carer over the age of 18). All three offer a mixture of timelines, discussion boards, information and help pages and chatrooms which enable carers to access the support they want at any time of day, and on any day … Read more

Celebrating life’s little progresses

Today’s post is one that is full of happiness! I have spoken in the past somewhat about how sometimes you feel like you’re standing still, when in fact you are moving forward.  And sometimes progress can be with such little footsteps that it is hard to recall how far you have actually come.  This is why my blog is very important to me, I am able to track how well Scarlett is doing and it certainly helps me to appreciate the little steps that my gorgeous girl takes. Scarlett’s school The Seashell Trust have such a perfect way of communicating … Read more

Behçet’s disease and the Eye

How are the eyes affected by Behçet’s disease? Eye involvement in Behçet’s disease has been recognised since the time of Hippocrates. Estimates of the prevalence vary in different countries and may represent differences in the disease, in access to healthcare and in available treatments. Up to 70% of patients with the Behçet’s disease will get eye involvement, and current estimates from around the world indicate that severe visual impairment occurs in 25% of involved eyes. Accordingly, the detection and treatment of eye involvement is vital. Despite the fact that ulceration of mucous membranes in the mouth and elsewhere are so … Read more