My name is Charlotte, my daughter Scarlett was diagnosed with Optic Nerve Hypoplasia at four and half months old, which is an under development of the Optic Nerve, this causes her to be blind. I decided to set up the site as a way to seek support and answers, in turn creating a platform for parents/carers in similar circumstances.
I approached VICTA for a grant to help me set up this family support network and they believed in the project that much that I was given the opportunity to become a member of their team. My initial intent for the site was to blog about Scarlett’s experiences, but it has grown into a forum and social networking space for parents and carers to blog about their own children.
I want to provide parents just like me with a hub of information and advice. When Scarlett was first diagnosed all I had available to me was information from the professionals, but I was desperate to actually find out what its like to raise a child with a visual impairment.